Lived Experience Panel | NYU Langone Health

Our Partners Lived Experience Panel

Lived Experience Panel

We established a lived experience panel, comprised of persons across various stages of Alzheimer’s Disease and Alzheimer’s Disease Related Dementias’ progression and care partners of these individuals. Members of the lived experience panel participate in annual conference calls to discuss issues relevant to the development and conduct of research studies for PLWD. Panel members share thoughts, experiences, and perspectives around living with dementia and contribute to conversations related to improving accessibility and relevance of research efforts. Panel members may also participate in intervention-specific feedback on an ad-hoc basis.