Working Group on Pediatric Gene Therapy & Medical Ethics
The Working Group on Pediatric Gene Therapy and Medical Ethics, part of NYU Langone’s Division of Medical Ethics, was launched in 2019 to address the emerging ethical issues surrounding genetic interventions in infants and children, including research design, patient autonomy, sibling and family involvement, fairness in access, and accuracy of information.
Along with representation from stakeholder communities, experts from bioethics, clinical trial design, industry, law, medicine, and patient advocacy serve to promote improved understanding of challenges and nascent best practices for ethical pediatric care across an evolving landscape of genetic technologies. Our group is funded by a gift from Parent Project Muscular Dystrophy.
Alison Bateman-House, PhD, MPH, MA (co-chair)
Lesha Shah, MD (co-chair)
Katherine Beaverson, MS
Arthur L. Caplan, PhD
Timothy Cripe, MD, PhD
Jennifer E. deSante-Bertkau, MD, MBE
Pat Furlong, MS, RN, BSN
Lisa Kearns, MS, MA
Aisha Langford, PhD, MPH
Timothy Miller, MD
Brendan Parent, JD
Holly Tabor, PhD