Working Group on Pediatric Gene Therapy & Medical Ethics | NYU Langone Health

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Division of Medical Ethics Research Working Group on Pediatric Gene Therapy & Medical Ethics

Working Group on Pediatric Gene Therapy & Medical Ethics

The Working Group on Pediatric Gene Therapy and Medical Ethics, part of NYU Langone’s Division of Medical Ethics, was launched in 2019 to address the emerging ethical issues surrounding genetic interventions in infants and children, including research design, patient autonomy, sibling and family involvement, fairness in access, and accuracy of information.

Along with representation from stakeholder communities, experts from bioethics, clinical trial design, industry, law, medicine, and patient advocacy serve to promote improved understanding of challenges and nascent best practices for ethical pediatric care across an evolving landscape of genetic technologies. Our group is funded by a gift from Parent Project Muscular Dystrophy.

Our Members

Alison Bateman-House, PhD, MPH, MA (co-chair)
Lesha Shah, MD (co-chair)
Katherine Beaverson, MS
Chuck Bucklar
Arthur L. Caplan, PhD
Timothy Cripe, MD, PhD
Jennifer E. deSante-Bertkau, MD, MBE
Pat Furlong, MS, RN, BSN
Lisa Kearns, MS, MA
Aisha Langford, PhD, MPH
Andrew McFadyen
Patrick Moeschen
Timothy Miller, MD
Brendan Parent, JD
Holly Tabor, PhD