NYU Langone Health researchers are seeking to analyze video recordings of sleep-related febrile seizures in living children to better understand these seizures and improve clinical care. 

Febrile seizures are convulsions in a child caused by a fever or illness. Febrile seizures are common in about 3 to 4 percent of children in the United States. They can occur in young, healthy children without prior neurologic symptoms. Research at the Sudden Unexplained Death in Childhood Registry and Research Collaborative (SUDCRRC) and other institutions have identified very rare associations of sudden deaths in children who have a history of febrile seizures.

Study Enrollment

To be eligible for enrollment, febrile seizure control subjects will have experienced a febrile seizure or convulsion between the ages of 6 months and 5 years of age and have video documentation from their parents or legal guardians to share for study analysis.

You are not paid for study participation, nor will you incur any costs.

Exclusion Criteria

Any child with a febrile seizure event before 6 months of age or after 5 years of age, or a child without video documentation of seizure event are not eligible for the study.

Enrollment Process

As part of the enrollment process, you will be asked to do the following:

• review and complete a study consent form on behalf of your child
• complete an online survey (5 minutes) about your child’s health, development, sleep and their febrile seizure or seizures
• share the video recording or recordings of your child’s sleep-related febrile seizure event
• allow us to share your child’s information with researchers on databrary.org

Databrary

Databrary is a secure, web-based data library that you can visit at databrary.org. The library allows authorized researchers to access shared videos, and potentially, to use carefully selected excerpts for scientific presentations or informational and educational purposes (based on the level of release given by participants). Authorized researchers use professional judgment and uphold ethical principles in determining which excerpts and images to present and with which audiences. The materials and data on Databrary are intended to accelerate research discovery.

Permission to Contact Form

Please fill out this form, and a study team member will contact you shortly.

Thank you very much for helping us better understand febrile seizures and SUDC.