The Sudden Unexplained Death in Childhood Registry and Research Collaborative (SUDCRRC) at NYU Langone has published several studies and given webinar presentations, including the following.

• Leitner DF … Devinsky O. Raphe and ventrolateral medulla proteomics in sudden unexplained death in childhood with febrile seizure history. Acta Neuropathol. 2024. DOI.
• Gould L … Devinsky O. Video analyses of sudden unexplained deaths in toddlers. Neurology. 2024. DOI.
• Gould L … Devinsky O. Are brief febrile seizures benign? A systematic review and narrative synthesis. Epilepsia. 2023. DOI.
• Leitner DF … Devinsky O.Proteomic differences in hippocampus and cortex of sudden unexplained death in childhood. Acta Neuropathol. 2022. DOI.
• Halvorsen M … Devinsky O. De novo mutations in childhood cases of sudden unexplained death that disrupt intracellular Ca2+ regulation. Proc Natl Acad of Sci. 2021. DOI.
• Leitner DF … Devinsky O. Blinded review of hippocampal neuropathology in sudden unexplained death in childhood reveals inconsistent observations and similarities to explained paediatric deaths. Neuropathol Appl Neurobiol. 2022. DOI.
• Harowitz J … Devinsky O. Seizure-related deaths in children: The expanding spectrum. Epilepsia. 2021. DOI.
• Crandall LG … Devinsky O. Evaluation of concordance between original death certifications and an expert panel process in the determination of sudden unexplained death in childhood. JAMA Netw Open. 2020. DOI.
• McGuone D … Devinsky O. Sudden unexplained death in childhood: A neuropathology review. Front Neurol. 2020. DOI.
• McGuone D … Devinsky O. Neuropathologic changes in sudden unexplained death in childhood. J Neuropathol Exp Neurol 2020. DOI.
• Phoon CKL … Devinsky O. Sudden unexpected death in asymptomatic infants due to PPA2 variants. Mol Genet Genomic Med. 2020. DOI.
• Crandall LG … Devinsky O. Potential role of febrile seizures and other risk factors associated with sudden deaths in children.JAMA Netw Open. 2019. DOI.
• Hoch MJ … Shepherd TM. 3T MRI whole-brain microscopy discrimination of subcortical anatomy, part 2: Basal forebrain. AJNR Am J Neuroradiol. 2019. DOI.
• Hoch MJ … Shepherd TM. 3T MRI whole-brain microscopy discrimination of subcortical anatomy, part 1: Brain stem. AJNR Am J Neuroradiol. 2019. DOI.
• Crandall LG. Inexplicable child deaths: Medicolegal death investigation resources from the SUDC Foundation and the SUDC Registry and Research Collaborative. Acad Forensic Pathol. 2017. DOI.
• Crandall L, Devinsky O. Sudden unexplained death in children. Lancet Child Adolesc Health. 2017. DOI.
• Halvorsen M … Devinsky O. Mosaic mutations in early-onset genetic diseases. Genet Med. 2016. DOI.
• Hesdorffer DC … Devinsky O. Sudden unexplained death in childhood: A comparison of cases with and without a febrile seizure history. Epilepsia. 2015. DOI.

Media Publications

• Seizures Identified as Potential Cause of Sudden Unexplained Deaths in Children (NYU Langone Health NewsHub)
• Study Points to Potential Cause of Sudden Unexplained Death in Children (NBC Nightly News)
• Crib Videos Offer Clue to Mysterious Child Deaths, Showing Seizures Sometimes Play a Role (AP News)

Webinars

Partners Against Mortality in Epilepsy. Sudden Unexplained Death in Childhood (SUDC): New Evidence, Important Directions for Research and Prevention.

National Association of Medical Examiners Medical Student Webinar Series: Sudden Unexplained Death in Childhood. Register to view.