Sudden Unexplained Death in Childhood Registry & Research Collaborative
Sudden Unexplained Death in Childhood Registry & Research Collaborative Resources

Sudden Unexplained Death in Childhood Registry & Research Collaborative Resources
Experts at NYU Langone’s Sudden Unexplained Death in Children Registry and Research Collaborative (SUDCRRC) are committed to advancing the understanding and support for families affected by unexplained pediatric deaths. The resources below are designed to help medical professionals, bereaved families, and researchers in navigating the complexities surrounding sudden unexplained death in children (SUDC).
- Unexplained Pediatric Deaths: Investigation, Certification, and Family Needs: Open access book through National Center for Biotechnology Information bookshelf provides national guidance developed by National Association of Medical Examiner’s Panel on Sudden Unexpected Deaths in Pediatrics. This book references two tools: Sudden Unexpected Child Death Investigation Reporting Form and Key Points for Certification of Unexplained Child Deaths (12M and Over).
- Unexplained Pediatric Deaths Webinar Series: Free, five-part webinar series providing six hours of training with free continuing medication education and continuing education units. Information presented supports the guidance in the Unexplained Pediatric Deaths book.
- SUDCRRC Brochure: Overview of the SUDCRRC, appropriate for professionals as well as the newly bereaved who may consider research participation.
- NYU Langone’s FACES: The mission of FACES (Finding a Cure for Epilepsy and Seizures) is to improve the quality of life for all those affected by epilepsy and seizures. It enables faculty and staff at NYU Langone’s Comprehensive Epilepsy Center to advance exceptional clinical care, cutting-edge research, ongoing patient education, and community support programs for children, adults, families, and caregivers who live with epilepsy and seizures.
- SUDC Foundation: The mission of the SUDC Foundation is to raise awareness, fund research, and serve those affected by SUDC.
- SUDC-UK: A UK charity dedicated to raising awareness, funding research, and supporting families.
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