Participate in Research

View our current list of Clinical Trials and Research Studies.

 

Value of Research

Medical research has led to milestone discoveries that make our lives healthier and better. In just the last few years, scientists have made significant strides in gaining a better understanding of dementia and aging-related brain disorders. Since its establishment thirty years ago, research has been at the fundamental core of the Silberstein Alzheimer's Institute, both in terms of basic research done in a laboratory as well as with volunteers within a clinical trials setting.

Laboratory research can only be fully appreciated and the potential fully realized through clinical studies. The success of many of the new treatments available to Alzheimer’s patients today is due, in part, to the ongoing participation of human volunteers who contribute to furthering the possibility for prevention and a cure. Some of our patients elect to participate in research studies, known as clinical trials, because they want to help contribute to research efforts with the hope that they may help others in the future. These participants have not only been part of trials that test the efficacy of new drug treatments but also state-of-the-art technologies, surgical devices and new procedures.

We use clinical trials as a way to determine what works best to help patients. The purpose of a trial is to determine the safety of a drug, treatment plan or procedure and to measure its effects. Clinical trials undergo strict regulatory measures through the Food and Drug Administration (FDA) before they become approved to be used in human participants through a trial.

Why Participate?

Clinical trials are the force behind the treatment, cure and prevention of any disease. Through the volunteerism of patients and those affected by an illness, knowledge is advanced, and a promise for a cure becomes more of a reality.

If you are considering participation in a trial, following is information that may be helpful to you:

  1. The decision to participate is completely your choice and you should never feel obligated or forced. You should know as much as you can about the study and always feel comfortable asking your doctor any questions.
  2. Your confidentiality is always and completely protected as stated by regulation: information gathered from the trial may be used but your name and specific health information will never be used outside of the trial setting.
  3. You can stop being a participant at any time during the cycle of the study.
  4. Your doctor may choose to end your participation if you health deteriorates.
  5. You will be made aware of any modifications in the study.

You should also ask some of these questions before you decide to commit to a trial:

  1. Why is this study being conducted?
  2. Will my doctor be conducting the study or will I be transferred to another healthcare clinician/facility?
  3. What if I am pleased with the study but not with the clinicians involved in the trial?
  4. What tests will I need to undergo
  5. What is the duration of the trial?
  6. How often will I be monitored?
  7. Has this study been done before or is this the first time?
  8. Who will be paying for the treatment?
  9. Will I be reimbursed for out-of-pocket expenses?
  10. Will my insurance provider by notified?
  11. Will I incur any insurance queries?
  12. Will I need to change any part of my daily routine?
  13. Will I be told during the trial if the treatment is effective on my condition?

It has been proven that whether or not an experimental treatment is effective, individuals who participate in clinical studies appear to do better than people in a similar stage of their disease who are not enrolled in a trial. The scientific reasoning for this advantage is based on the general high quality of care provided during clinical studies.