Preapproval Access & Gene Therapy Subgroup
The mission of the Preapproval Access and Gene Therapy Subgroup is to advance research, policy, and education regarding the ethical issues surrounding access to investigational gene-based interventions. We strive to ensure the fair and transparent treatment of all patients seeking access to gene therapies.
Our Team
Alison Bateman-House, PhD, MPH
Chair
alison.bateman-house@nyulangone.org
Arthur L. Caplan, PhD
arthur.caplan@nyulangone.org
Rafael Escandon, PhD, DrPH, MPH
rafael.escandon@gmail.com
Pat Furlong, MS, RN, BSN
pat@parentprojectmd.org
Lisa Kearns, MS, MA
lisa.kearns@nyulangone.org
Andrew McFadyen, MHSc, BEd
mcfadyena@me.com
Kenneth Moch, MBA
kenneth.moch@gmail.com
Lesha D. Shah, MD
lesha.shah@mountsinai.org
Tom Watson, BSc
tom.watson@bionical-emas.com
Learn more about our team and other members of NYU Langone’s Division of Medical Ethics Working Group on Compassionate Use and Preapproval Access.
For questions about the Preapproval Access and Gene Therapy subgroup, please contact John Massarelli, program coordinator, at john.massarelli@nyulangone.org.