Division of Autonomic Disorders
The Division of Autonomic Disorders, part of NYU Langone Health’s Department of Neurology, brings together clinicians and scientists who are dedicated to advancing treatment for children and adults with autonomic disorders through clinical research.
Our active clinical research program specializes in finding new therapies for patients living with rare autonomic disorders caused by neurodegeneration or genetic errors. Our division has an accredited neurology fellowship program to train physicians and research scientists. We are committed to translational research to bridge the gap between basic science and clinical medicine.
Outpatient clinical care and research are based at NYU Langone’s Dysautonomia Center, one of the few centers in the world that specializes in treating severe autonomic dysfunction. It is a one-of-a-kind facility for patients and their families, as well as a resource for physicians. The Dysautonomia Center is the only facility in the United States dedicated to treating familial dysautonomia (FD) and other rare genetic diseases that affect the sensory and autonomic nervous systems. The center is also one of the few places in the world that offers specialist multidisciplinary care for people with multiple system atrophy and has an active research program focused on this disorder.
From its origin as a small clinic to today’s expanded program as a translational research powerhouse with a full-time, 12-person care team, the Dysautonomia Center has never stopped advancing research, education, and treatment. We are proud to host many visiting scientists and collaborators from around the globe.
History of the Dysautonomia Center
The Dysautonomia Treatment and Evaluation Center was established in 1969 at NYU. Its mission was to provide the best medical care to people with FD. The condition is also known as Riley-Day syndrome or hereditary sensory and autonomic neuropathy type III.
From the beginning, the center was supported by Dysautonomia Foundation, Inc., a nonprofit organization created in 1951 by a group of parents with affected children.
In 2007, Horacio Kaufmann, MD, joined NYU Langone to direct the Dysautonomia Center together with Lucy J. Norcliffe-Kaufmann, PhD. He is one of the world’s foremost experts and a leader in the field of autonomic disorders. Under their direction, the Dysautonomia Center expanded and built new research facilities. Dr. Kaufmann has directed a comprehensive program for the study of autonomic disorders and conducted seminal clinical trials of the main drugs used in the treatment of autonomic failure.
Today, the Dysautonomia Center is a comprehensive medical facility dedicated exclusively to the research and treatment of genetic and nongenetic (sporadic) disorders of the autonomic nervous system in children and adults. It has an active research program with funding from government grants, foundations, and industry partners. This approach has successfully brought new treatments to the clinic.
Autonomic Disorders Observerships
We offer observerships for physicians who wish to spend time at the Dysautonomia Center to learn how we treat patients with autonomic dysfunction. We care for people with Parkinson’s disease, multiple system atrophy, hereditary sensory and autonomic neuropathies such as FD, pure autonomic failure, diabetic autonomic neuropathy, autoimmune autonomic conditions, and neurally mediated syncope. We encourage all observers to participate in research opportunities and learn strategies for studying rare diseases.
Interested applicants can send a CV, letter of intent, and two references to:
NYU Langone Dysautonomia Center
530 First Avenue
New York, NY 10016
For more information on our observerships, email Ms. Lugg at firstname.lastname@example.org, or call 212-263-7225.
Division of Autonomic Disorders Events
The Dysautonomia Center hosts events for people living with autonomic disorders, as well as clinicians and researchers.
Familial Dysautonomia Day
This annual one-day event brings together patients, family members, and clinicians. Topics include practical advice on caring for people with autonomic disorders, as well as presentations on the most current research. Speakers come from a variety of backgrounds, including medicine, research, rehabilitation, and drug development, to share their expertise and knowledge throughout the day.
Horacio Kaufmann, MD
Director, Division of Autonomic Disorders, Dysautonomia Center, and Autonomic Disorders Fellowship Program
The Felicia B. Axelrod Professor of Dysautonomia Research, Department of Neurology
Professor, Departments of Medicine and Pediatrics
Lucy J. Norcliffe-Kaufmann, PhD
Associate Director, Dysautonomia Center
Associate Professor, Departments of Neurology and Neuroscience and Physiology
Nursing and Research Staff
Erin Barnes, MSN, RN, NP-C
Family Nurse Practitioner
Jose Martinez, MA
Senior Clinical Trials Manager
Front Desk Staff
To learn more about the Division of Autonomic Disorders, please contact Dr. Kaufmann at 212-263-7225. You can also contact Ms. Lugg, administrative lead, at email@example.com.