Pediatric Rheumatology Research | NYU Langone Health

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Division of Pediatric Rheumatology Pediatric Rheumatology Research

Pediatric Rheumatology Research

The Division of Pediatric Rheumatology at NYU Langone participates in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry to help develop a database for childhood rheumatic diseases such as juvenile idiopathic arthritis, dermatomyositis, and systemic lupus erythematosus. The registry illustrates the feasibility of using data-intensive registries for observational studies, comparative research, translational research, and clinical trials.

Division investigators have collaborated with CARRA in research pertaining to the development of consensus treatment protocols for dermatomyositis. The division has also collaborated in the assessment of skin disease in patients with lupus and dermatomyositis, as well as validating current skin scoring tools in pediatrics.

Future translational research projects include studies of type 1 interferon and toll-like receptor pathways in understanding differences in treatment response in inflammatory arthritis.

Recent Publications

Lupus anti-coagulant hypoprothrombinemia syndrome across different ages: a case report and review of the literature

Chumsky, Jessica; Kahn, Philip J; Carroll, William L; Pierce, Kristyn A; Hillier, Kirsty

Clinical rheumatology. 2023 Aug ; 42:2231-2236

Implementation of rheumatology health care transition processes and adaptations to systems under stress: a mixed methods study

Chang, Joyce C; Sears, Cora; Bitencourt, Nicole; Peterson, Rosemary; Alperin, Risa; Goh, Y Ingrid; Overbury, Rebecca S; Sadun, Rebecca; Smitherman, Emily; White, Patience H; Lawson, Erica F; Carandang, Kristine

Arthritis care & research (2010). 2023 Mar ; 75:689-696

Multisystem inflammatory syndrome in children (MIS-C) and retropharyngeal edema: A case series

Daube, Ariel; Rickert, Scott; Madan, Rebecca Pellett; Kahn, Philip; Rispoli, Joanne; Dapul, Heda

International journal of pediatric otorhinolaryngology. 2021 Mar 04; 144:110667

Mucocutaneous Manifestations of Multisystem Inflammatory Syndrome in Children During the COVID-19 Pandemic

Young, Trevor K; Shaw, Katharina S; Shah, Jinal K; Noor, Asif; Alperin, Risa A; Ratner, Adam J; Orlow, Seth J; Betensky, Rebecca A; Shust, Gail F; Kahn, Philip J; Oza, Vikash S

JAMA dermatology. 2021 Feb 01; 157:207-212

Evaluation of the reliability and validity of the Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) in pediatric cutaneous lupus among pediatric dermatologists and rheumatologists

Kushner, C J; Tarazi, M; Gaffney, R G; Feng, R; Ardalan, K; Brandling-Bennett, H A; Castelo-Soccio, L; Chang, J C; Chiu, Y E; Gmuca, S; Hunt, R D; Kahn, P J; Knight, A M; Mehta, J; Pearson, D R; Treat, J R; Wan, J; Yeguez, A C; Concha, J S S; Patel, B; Okawa, J; Arkin, L M; Werth, V P

British journal of dermatology. 2019 Jan ; 180:165-171

Comparing the importance of quality measurement themes in juvenile idiopathic inflammatory myositis between patients and families and healthcare professionals

Tory, Heather O; Carrasco, Ruy; Griffin, Thomas; Huber, Adam M; Kahn, Philip; Robinson, Angela Byun; Zurakowski, David; Kim, Susan

Pediatric rheumatology online journal. 2018 Apr 19; 16:28

Childhood Arthritis and Rheumatology Research Alliance consensus clinical treatment plans for juvenile dermatomyositis with skin predominant disease

Kim, Susan; Kahn, Philip; Robinson, Angela B; Lang, Bianca; Shulman, Andrew; Oberle, Edward J; Schikler, Kenneth; Curran, Megan Lea; Barillas-Arias, Lilliana; Spencer, Charles H; Rider, Lisa G; Huber, Adam M

Pediatric rheumatology online journal. 2017 Jan 11; 15:1

Childhood Arthritis and Rheumatology Research Alliance Consensus Clinical Treatment Plans for Juvenile Dermatomyositis with Persistent Skin Rash

Huber, Adam M; Kim, Susan; Reed, Ann M; Carrasco, Ruy; Feldman, Brian M; Hong, Sandy D; Kahn, Philip; Rahimi, Homaira; Robinson, Angela Byun; Vehe, Richard K; Weiss, Jennifer E; Spencer, Charles

Journal of rheumatology. 2017 01 ; 44:110-116